Although she has many titles, being a Published Author is near and dear to her heart. This goes hand in hand with her position with the Moebius Syndrome Foundation as a Board Director. KiOwana’s book is about her oldest son Khaleb. He was born with Moebius syndrome, a condition where the 6th and 7th cranial nerves in his face are paralyzed. Khaleb cannot smile or make facial expressions. KiOwana shares an intimate and emotional journey through the first nine years of his life. As a young mother, she learned to be resilient through trying times.
From Khaleb being born with clubbed feet to choking in daycare, her story gives you a sneak peek into their lives. This book has gained popularity throughout the Moebius Syndrome community, schools, families, South Carolina, Georgia, Kentucky, and Arizona media.
Her goal is to help parents and family members of children with Moebius syndrome navigate the challenges that come with having a child with special needs and also spread awareness.
When did you develop your love for writing?
I have always enjoyed journaling since I was in middle school. I pride myself on my penmanship and the ability to release my thoughts and imagination onto paper.
What inspired your book?
I endured many challenges being now only a young mother in the military but a young mother with a special needs child. Although there were many times when I felt alone, I knew there were others in the Moebius syndrome community that felt my heartaches. Not only did the story of my son’s life deserve to be heard because of how brave and resilient he was, but the need to spread awareness in the world about Moebius syndrome was also imperative.
What message do you hope readers take away from this book?
I want readers to take away information about Moebius syndrome, understand it, and tell someone else about this condition.
Where do you hope to see your work in the next 3-5 years?
I see a second book coming out about the teenage years of Khaleb navigating life with Moebius syndrome. I see my book in Barnes and Noble, and more people beyond the Moebius Syndrome Community reading it.
How can readers support the Moebius Syndrome Foundation?
Readers can support the Moebius Syndrome Foundation by donating on their website.
What is your definition of a Pretty Woman Who Hustles?
A Pretty Woman Who Hustles is someone true to herself. She has a vision for herself, her life, family, and business. She will have challenges along the way, but she will hold her head up high and keep pushing.
Social media handles and Website:
www.facebook.com/theboywhosmileswithhisheart
The Boy Who Smiles with His Heart (A Moebius Syndrome Story) https://www.amazon.com/dp/1304957934/ref=cm_sw_r_apan_i_A2XQ8F923C3HDTQYDFJG
